Personal and family information will not be released to any third party, or made public, for any reason. Only population-level information on groups, not individuals, will be published. The privacy of volunteers in thie research program is taken very seriously. All records on participants will be securely stored by a numerical identifier and will be de-identified for analysis.

This project satisfies the requirements of the Human Research Ethics Committee of The Australian National University, as well as the Ethics Committees in collaborating regions.