Accurate and comprehensive recording of diseases is critical for monitoring prevalence and providing consistent data to inform population-wide health interventions. One of the key challenges facing dementia health policy in Australia is a lack of reliable and consistent data on the prevalence of dementia which limits our ability to address pressing policy questions.
This talk will outline the key data gaps in dementia research and outline the process of developing a Dementia National Best Practice Data Set (NBPDS) by The Australian Institute of Health and Welfare. This will examine what are the existing data gaps, the harmonisation of metadata items and the process of stakeholder consultation at the Institute.
Sai Campbell is a 3rd year PhB student undertaking an internship in the Dementia Unit at the Australian Institute of Health and Welfare where she is co-supervised by Dr. Ellie Paige, Dr. Grace Joshy and Professor Emily Banks. She has a background in immunology and genetics and currently works as a Research and Technical Assistant at the John Curtin School of Medical Research.