A new national study has launched to give Australians a better understanding of how First Nations people view and experience cancer.
Kulay Kalingka - the first study of this kind in Australia - is led, designed and implemented by an Aboriginal and Torres Strait Islander research team at the Australian National University (ANU), and funded by Cancer Australia. The Kulay Kalingka study is nestled within the larger Mayi Kuwayu study.
‘Kulay Kalingka’ means ‘net bag in the water’ in Ngiyampaa (Wongaibon) language. The net bag is symbolic of how people and families fighting cancer can include Aboriginal and Torres Strait Islander health and wellbeing concepts for cultural, medicinal, and spiritual healing, alongside clinical treatments.
The research team will collect data for 22 cancer control indicators in First Nations people.
These include their knowledge, attitudes and understanding of cancer, participation in health promotion and cancer screening programs.
The study will also examine exposure to risk factors, and patient and carer experiences of cancer, including cancer treatment and participation in clinical trials.
Aboriginal and Torres Strait Islander people continue to experience disparities in cancer outcomes when compared to non-Indigenous Australians, including higher incidence rates, and cancer mortality rates, and lower participation rates in bowel, breast, and cervical cancer population screening programs.
Between 2006 and 2019 the gap in cancer mortality between Aboriginal and Torres Strait Islander people and non-Indigenous Australians widened, with a 14% increase in cancer mortality rates for Aboriginal and Torres Strait Islander people and a 13% decrease in the rates for non-Indigenous Australians.
Assistant Minister Malarndirri McCarthy has said that improving cancer outcomes for First Nations people is a national priority for the Government.
"Cancer is one of the leading causes of death in our communities and we are more likely to die from cancers associated with preventable risk factors."
"This means we must understand the barriers relating to accessing health care and the uptake of screening.
"Kulay Kalingka is just one way the Government is striving to work respectfully and in true partnership with First Nations people, communities and organisations to seek insights that will help close the gap on health outcomes."
Professor Ray Lovett from the National Centre for Aboriginal and Torres Strait Islander Wellbeing Research at ANU said the study will help address some significant data gaps.
"We need to better understand the insights and experiences of Aboriginal and Torres Strait Islander people with cancer, and learn from this how we can improve their cancer outcomes," Professor Lovett said.
"There are significant gaps in data for Aboriginal and Torres Strait Islander peoples. This new study aims to address these disparities."
Professor Dorothy Keefe, CEO Cancer Australia, said: "We are proud to work in partnership with the National Centre for Aboriginal and Torres Strait Islander Wellbeing Research to develop and implement culturally safe and appropriate strategies, programs and initiatives such as the Kulay Kalingka study, with the aim of improving health and wellbeing."
"The data will be of enormous benefit to the Australian Cancer Plan we are currently developing."