Associate Professor Jane Desborough
Jane Desborough (DAppScNursing; GDipMid; MPH, PhD) is an Associate Professor at the National Centre for Epidemiology and Population Health, Australian National University. She is a mixed methods researcher, who works closely with patients, clinicians and policy makers to conduct research that is responsive to their needs and preferences, and targets quality and outcomes improvement.
Jane holds an ARC Discovery Early Career Researcher Award (DECRA) 2022 for which she is examining the experiences and preferences of Australian families and individuals on low, middle, and high incomes in managing the OOP costs of chronic disease.
Jane leads the Health Experience Team for the ANU's inaugural grand challenge project Our Health In Our Hands (OHIOH). This team is comprised of more than 20 researchers, more than half of whom are living with Multiple Sclerosis (MS) or Type 1 Diabetes(T1D). Its aim is to embed the experiences and perspectives of people living with MS and T1D into the project from inception to implementation.
Jane is also leading an Australian Department of Health funded project examining people with rare diseases' experiences from symptom onset to diagnosis, with the aim of developing resources for healthcare providers to increase awareness of rare diseases and improve diagnosis.
From March 2020 to November 2021 Jane worked on secondment to the Australian Government Department of Health as an Action Researcher with the COVID-19 Primary Care Response Group.
Jane is a registered nurse and midwife, and has worked clinically in a variety of settings for 25 years, including remote area nursing. Before moving to academia, Jane worked as a Senior Policy Officer at the ACT Health Directorate in the Office of the ACT Chief Nurse.
- Patient, family, carer and clinicians' experiences and perspectives
- Consumer engagement and coproduction research
- Patient enablement
- Primary health care
- Quality measurement in health care
- Knowledge translation
- Principal investigator, Missed opportunities in clinical practice: Tools to enhance healthcare providers’ awareness and diagnosis of rare diseases in Australia
- Principal investigator, Our Health In Our Hands - personalised medicine transforming health care
- Researcher, A Pilot Randomised Controlled Trial of Implementation of ‘The Patient Enablement Model’
- Researcher, A systematic review of the literature examining the relative efficacy of peridischarge strategies to reduce unplanned 30-day readmission rates after knee and hip arthroplasty
- Researcher, ANU Telehealth in Primary Care Study
- Researcher, Developing technologies to support patients’ transition from acute to primary care: enabling orthopaedic patients and preventing unplanned 30-day readmissions.
- Supervisor, An exploration of the experiences and perceptions of young people with type 1 diabetes mellitus and their parents regarding young people’s transition to independent self-management
- Supervisor, Policy review: out-of-pocket payments for health care and medicines - national and international contexts
- Supervisor, Systematic review of patient autonomy and preferences related to genomics
- Desborough, J, Hall Dykgraaf, S, Sturgiss , E et al. 2022, 'What has the COVID-19 pandemic taught us about the use of virtual consultations in primary care?', Australian Journal of General Practice, vol. 51, no. 3, pp. 179-183.
- Chhabra, M, Perriman, D, Phillips, C et al. 2022, 'Understanding factors affecting 30-day unplanned readmissions for patients undergoing total knee arthroplasty (TKA): the ACT Transition from Hospital to Home Orthopaedics Survey', BMJ Open, vol. 12, no. 4, pp. 1 - 8.
- Sturgiss, E, Dut, G, Matenge, S et al. 2022, 'COVID-19 and access to sexual and reproductive healthcare for young people: An overview of the international literature and policy', Australian Journal of General Practice, vol. 51, no. 4, pp. 271-277.
- Parkinson, A, Brunoro, C, Leayr, J et al. 2022, 'Intertwined like a double helix: A meta-synthesis of the qualitative literature examining the experiences of living with someone with multiple sclerosis', Health Expectations, vol. 25, no. 3, pp. 803-822.
- Sturgiss, E, Desborough, J, Hall Dykgraaf, S et al. 2022, 'Digital health to support primary care provision during a global pandemic', Australian Health Review, vol. 46, no. 3, pp. 269-272.
- Yeung, S, Perriman, D, Chhabra, R et al. 2022, 'ACT Transition from Hospital to Home Orthopaedic Survey: a cross-sectional survey of unplanned 30-day readmissions for patients having total hip arthroplasty', BMJ Open, vol. 12, no. 5.
- Brew-Sam, N, Parkinson, A, Lueck, C et al. 2022, 'The current understanding of precision medicine and personalised medicine in selected research disciplines: study protocol of a systematic concept analysis', BMJ Open, vol. 12, no. 9.
- Hettiarachchi, C, Daskalaki, E, Desborough, J et al. 2022, 'Integrating Multiple Inputs Into an Artificial Pancreas System:
Narrative Literature Review', JMIR Diabetes, vol. 7, no. 1, pp. 1-18.
- Halcomb, E, Fernandez, R, Mursa, R et al. 2022, 'Mental health, safety and support during COVID-19: A cross-sectional study of primary health care nurses', Journal of Nursing Management, vol. 30, no. 2, pp. 393-402.
- Hall Dykgraaf, S, Matenge, S, Desborough, J et al. 2021, 'Protecting Nursing Homes and Long-Term Care Facilities From COVID-19: A Rapid Review of International Evidence', Journal of the American Medical Directors Association, vol. 22, pp. 1969-1988.
- Butler, D, Jorm, L, Larkins, S et al. 2021, 'Examining area-level variation in service organisation and delivery across the breadth of primary healthcare. Usefulness of measures constructed from routine data', PLOS ONE (Public Library of Science), vol. 16, no. 12 December, pp. 1-15.
- James, S, Ashley, C, Williams, A et al. 2021, 'Experiences of Australian primary healthcare nurses in using telehealth during COVID-19: a qualitative study', BMJ Open, vol. 11, no. 8, pp. 1-7.
- Suominen, H, Manocha, M, Desborough, J et al. 2021, 'Finger Tapping Measures for Parkinsonâ€™s Disease: Preliminary Evaluation of an Android Application for Data Collection in Australia', 15th International Congress on Nursing Informatics, ed. Michelle Honey, Charlene Ronquillo, Ting-Ting Lee, Lucy Westbrooke, IOS Press Ebooks, Netherlands, pp. 475-480.
- Matenge, S, Sturgiss , E, Desborough, J et al. 2021, 'Ensuring the continuation of routine primary
care during the COVID-19 pandemic: a review of
the international literature', Family Practice, vol. 2021, no. 4, pp. 1-15.
- Pramono, A, Desborough, J, Smith, J et al. 2021, 'The social value of implementing the ten steps to successful breastfeeding in an Indonesian hospital: A case study', Yale Journal of Biology and Medicine, vol. 94, no. 3, pp. 429-458.
- Pramono, A, Smith, J, Desborough, J et al. 2021, 'Social value of maintaining baby-friendly hospital initiative accreditation in Australia: case study', International Journal for Equity in Health, vol. 20, no. 1, pp. 1-12.
- Brew-Sam, N, Chhabra, M, Parkinson, A et al. 2021, 'Experiences of Young People and Their Caregivers of Using Technology to Manage Type 1 Diabetes Mellitus: Systematic Literature Review and Narrative Synthesis', JMIR Diabetes, vol. 6, no. 1, pp. 1-14.
- Munindradasa, A, Blashki, G, Hall Dykgraaf, S et al. 2021, 'General practitioner management of mental health during the COVID-19 pandemic', Australian Journal of General Practice, vol. 50, no. 7, pp. 472-477.
- James, S, Halcomb, E, Desborough, J et al. 2021, 'Barriers and facilitators to lifestyle risk communication by Australian general practice nurses', Australian Journal of Primary Health, vol. 27, pp. 30-35.
- Parkinson, A, Drew, J, Hall Dykgraaf, S et al. 2021, ''They're getting a taste of our world': A qualitative study of people with multiple sclerosis' experiences of accessing health care during the COVID-19 pandemic in the Australian Capital Territory', Health Expectations, vol. 24, no. 5, pp. 1607-1617.
- Desborough, J, Hall, S, Davis, S, Kidd, M. 2021, 'Reflecting on Australia's five principles for pandemic response in primary care through the lens of early international experiences of Covid 19', Australian Journal of General Practice.
- Desborough, J, Hall, S, Phillips, C, Wright, M, Maddox, R, David S, Kidd M. 2021, 'Lessons for the global primary care response to COVID-19: a rapid review of evidence from past epidemics', Family Practice, pp. 1-15.
- Hall, S, Desborough, J, de Toca , L et al. 2021, '"A decade's worth of work in a matter of days": The journey to telehealth for the whole population in Australia', International Journal of Medical Informatics, vol. 151, pp. 1-10.
- Henschke, A, Desborough, J, Parkinson, A et al. 2021, 'Personalizing Medicine and Technologies to Address the Experiences and Needs of People with Multiple Sclerosis', Journal of Personalized Medicine, vol. 11, no. 8, pp. 1-9.
- Desborough, J, Brunoro, C, Parkinson, A et al. 2020, 'It struck at the heart of who I thought I was: A meta-synthesis of the qualitative literature examining the experiences of people with multiple sclerosis', Health Expectations, vol. 23, no. 5, pp. 1007-1027.
- Desborough, J, Hall Dykgraaf, S, Rankin, D et al. 2020, 'The importance of consistent advice during a pandemic: A analysis of Australian advice regarding personal protective equipment in healthcare settings during COVID-19', Australian Journal of General Practice, vol. 49, no. 6, pp. 369-372.
- Hall Dykgraaf, S, Desborough, J, Kelaher, C et al. 2020, 'COVID-19 highlights risks of healthcare and social care workers attending work while ill', Australian Journal of General Practice, vol. 49, pp. 1-2.
- Desborough, J, Hall Dykgraaf, S, de Toca , L et al. 2020, 'Australia's national COVID-19 primary care response', Medical Journal of Australia, vol. 213, no. 3, pp. 104-106.e1.
- James, S, McInnes, S, Halcomb, E et al 2020, 'Lifestyle risk factor communication by nurses in general practice: Understanding the interactional elements', Journal of Advanced Nursing, vol. 76, no. 11, pp. 234-242.
- James, S, Desborough, J, McInnes, S et al 2020, 'Nonverbal communication between registered nurses and patients during chronic disease management consultations: Observations from general practice', Journal of Clinical Nursing, vol. 29, no. 13-14, pp. 2378-2387.
- James, S, McInnes, S, Halcomb, E et al. 2020, 'General practice nursesâ€™ communication strategies for lifestyle risk reduction: A content analysis', Journal of Advanced Nursing, vol. 76, no. 11, pp. 1-10.
- Pramono, A, Desborough, J & Smith, J 2019, 'The Ten Steps to Successful Breastfeeding Policy Review', Breastfeeding Review, vol. 27, no. 3, pp. 15-28.
- James, S, Halcomb, E, Desborough, J et al. 2019, 'Lifestyle risk communication by general practice nurses: An integrative literature review', Collegian, vol. 26, no. 1, pp. 183-193.
- Zhou, M, Desborough, J, Parkinson, A et al 2019, 'Barriers to pharmacist prescribing: a scoping review
comparing the UK, New Zealand, Canadian and Australian
experiences', International Journal of Pharmacy Practice, vol. 27, no. 6, pp. 479-489.
- James, S, Desborough, J, McInnes, S et al 2019, 'Strategies for using non-participatory video research methods in general practice', Nurse Researcher, vol. 27, no. 2.
- Desborough, J, Phillips, C, Mills, J et al. 2017, 'Developing a positive patient experience with nurses in general practice: an integrated model of patient satisfaction and enablement', Journal of Advanced Nursing, vol. 74, no. 3, pp. 564-578.
- Desborough, J, Parkinson, A, Korda, R et al 2018, 'The practical use of the Patient Enablement and Satisfaction Model in nurse-led outpatient cardiac clinics', Collegian, vol. 26, pp. 415-421.
- James, S, Halcomb, E, Desborough, J et al 2018, 'General practice nurse perceptions of their communication on lifestyle risk', Australian Nursing and Midwifery Journal, vol. 25, no. 8, pp. 1pp.
- Du, W, Luther, M, Desborough, J et al 2018, 'Variation in and factors associated with psychosocial interventions for hospitalised self-harm patients in New South Wales, Australia', General Hospital Psychiatry, vol. 54, pp. 1-4pp.
- Desborough, J, Banfield, M, Phillips, C et al 2017, 'The process of patient enablement in general practice nurse consultations: a grounded theory study', Journal of Advanced Nursing, vol. 73, no. 5, pp. 1085-1096pp.
- Desborough, J., Bagheri, N., Banfield, M., Phillips, C., Mills, J., Korda, R., 2016, 'The impact of general practice nursing care on patient satisfaction and enablement in Australia: a mixed methods study.', International Journal of Nursing Studies, vol. 64, pp. 108-119.
- Gardner, K, Parkinson, A, Banfield, M et al 2015, 'Usability of patient experience surveys in Australian primary health care: a scoping review', Australian Journal of Primary Health, 22 (2), 93 - 99.
- Desborough, J, Phillips, C, Banfield, M et al 2015, 'Impact of nursing care in Australian general practice on the quality of care: A pilot of the Patient Enablement and Satisfaction Survey (PESS)', Collegian, vol. 22, no. 2, pp. 207-214.
- Gardner, K, Parkinson, A, Banfield, M et al. 2014, Environmental scan of patient experience surveys used in primary health care.
- Desborough, J, Banfield, M & Parker, R 2013, 'A tool to evaluate patients' experience of nursing care in Australian general practice: Development of the Patient Enablement and Satisfaction Survey (PESS)', Australian Journal of Primary Health, 20 (2), 209-15.
- Desborough, J, Parker, R & Forrest, L 2013, 'Nurse satisfaction with working in a nurse led primary care walk-in centre: an Australian experience', Australian Journal of Advanced Nursing, vol. 31, no. 1, pp. 11-19.
- Desborough, J, Parker, R & Forrest, L 2013, 'Development and implementation of a nurse-led walk-in centre: evidence lost in translation?', Journal of Health Services Research and Policy, vol. 18, no. 3, pp. 174-178.
- Desborough, J 2012, 'How nurse practitioners implement their roles', Australian Health Review, vol. 36, no. 1, pp. 22-26.
- Parker, R, Desborough, J & Forrest, L 2012, 'Stakeholder perceptions of a nurse led walk-in centre', BMC Health Services Research, vol. 12, no. 1, pp. 1-7.
- Crow, J., Walker, L., Desborough, J., 2012, Nurse clinics in Australian general practice: planning, implementation and evaluation, available at: http://apna.asn.au/lib/pdf/Resources/AMLAresources/20121003_rsc_FINAL-Nu...
- Desborough, J, Forrest, L & Parker, R 2012, 'Nurse-led primary healthcare walk-in centres: an integrative literature review', Journal of Advanced Nursing, vol 68, no. 2, pp. 248-263.
- Parker RM, Forrest LE, Desborough J, McRae I, Boyland T. (2011) Independent evaluation of the nurse-led ACT Health Walk-in Centre. Submitted to ACT Health 30th June 2011. Canberra, Australian Primary Health Care Research Institute.